Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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During a recent Stepping Out to Cure Scleroderma walk, we wanted to know: what motivates our community to step out and show up? We asked our incredible participants, and the answers were nothing short of inspiring! From honoring loved ones to raising awareness, every step is a step closer to a cure. 💙 What’s your reason for stepping out? 💬 #NationalSclerodermaFoundation #SteppingOut #Scleroderma | National Scleroderma Foundation
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What is CONQUER—and why is it so important for scleroderma research? 🔬 In a new video shared at the 2025 SRF Patient Forum, CONQUER Steering Committee Co-Chair Dr. Shervin Assassi breaks down how this bio-registry is helping researchers better understand systemic sclerosis. Funded by the SRF, CONQUER collects clinical data and biosamples from people newly diagnosed with scleroderma, giving researchers the tools they need to discover better treatments and, eventually, a cure. Learn more about ho
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Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research. Your support of the SRF Research Challenge fuels groundbreaking projects like Dr. Longaker—work that rethinks how to approach fibrosis, bringing new hope to people with scleroderma. Now more than ever, your gift helps keep promising research on track and brings us one step cl
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